I wish that I hadn’t grown up with “disability” being a word attached to so much fear. For a long time I thought it referred to people unfortunate enough to have been born unable to do things I did like run or go to school. I now see that everything I thought disability was was wrong. I now know that it is a broad spectrum encompassing so many beautiful and diverse people with so many different abilities and ways of life.
We need to shout about disabled pride for the future. For the children who might learn about disability and differences in a positive way rather than a negative and frightening one. For the people who will develop disability as young adults or teenagers and not feel ashamed or out of place. So that those children don’t need to fear ignorance and bullying and isolation from others and from themselves. My life would have played out differently if someone had educated my family and friends. If they weren’t still scared to death of the phrase “disability,” I wouldn’t have to keep pretending things were okay when they weren’t. I wouldn’t have to push myself to unbearable physical and mental pain to be what they believed I should be. I could just be me.
I hope that in the future, there will be an even greater openness around help. Medical devices, mobility aids, stim toys, you name it. All the things so many people rely on just to live their lives. Today many people, including myself, feel a sense of shame around these things. I keep them a secret as much as possible. I feel that they are wrong. That I am wrong when I use them. And it shouldn’t be that way. We should celebrate all the different innovations that have made life possible for so many different people and all that they are now able to bring to the world.
Disability Pride Month is important to me for the future me’s. For those girls who might not have to hide their pains and can ask for assistance without shame and without backlash. Young people who are believed by everyone around them and embraced in any alternative ways they have to get by in their world. Whether that be with medicines, wheelchairs, caretakers or anything else. I hope that when those future young people are here, their families are no longer scared of the word “disabled” and accept an open and accessible world for all. I wish for there not to be more me’s soon enough. That they can instead feel loved and in turn love themselves. Proudly.